Saturday, November 26, 2011

To Quote Sponge Bob...

DBT. Dialectical behavioral therapy. This is a specific type of therapy helpful with Josh and Lauren's diagnoses, it's what they do at Youth Care in Utah and what Lauren and I are studying at The Tarnow Center. We then teach it to Rick so we all know the info.

Radical Acceptance. Accepting that at this specific time and place, this is where I am and how things are. Sounds easy. Not really.

I have a lot of things I need to accept. You'd think I'd have already done that by now, but that's not totally true. I have come to realize, and be ok with, many situations but I have a long way to go.

One of the things I've accepted is the situation in which I grew up in and know, REALLY know my parents loved me and did the best they could. I am at peace with all of that. Because of my radical acceptance of this situation, I could give my mom the love, care and understanding she needed her last few years and why I can be there for Dad now. I'm very grateful for it, as I know with my mom, and will know with my dad when he's gone, that I did all I could for them, with no regrets.

I thought I had accepted my kids' diagnoses. However, recently I came to the realization that I was under the impression that if I worked my tail off giving them all possible opportunities to learn healthy life tips and coping strategies while young, they would have SOME difficulties but be much less affected.

I was wrong!

They still are in anguish, with more serious life situations, and I'm having trouble accepting this fact. I really don't WANT to accept it, tbh. Hehehe. Like that? See i'm still hip. I know what tbh is! Except I think that saying 'I'm hip' negates it all.

Ok. What was I saying?

This is a new level of grief, I think. Somehow my mind messed with me, or maybe it was my heart, that said if I did everything possible for Lauren and Josh they would be just like everyone else's teenagers. I know, I know!!! But typical sounds wonderful to me!

This is an example of not having radical acceptance! Now, life as it is, with both kids struggling, is the truth staring me down. I don't like it at all.

We got thru Thanksgiving without Josh. I only had 1 small tearful moment, but then it was time to go volunteer at George R Brown, and then pick up Dad. Glad Dr. Roche suggested volunteering. Really took me out of my thoughts.

But now, I don't want to decorate for Christmas. Josh isn't here and he should be! How can I decorate, how can we do the tree without all 4 of us here, drinking egg nog, listening to Johnny Mathis's Christmas album? It seems like I shouldn't do it because he won't be here to enjoy it. I'm being mean by having Christmas without him here.

THIS is radical acceptance! Josh is NOT here. Rick, Lauren and I are. I can't sit and feel sorry for myself. I need to be here for my husband, daughter and dad. Christmas is coming whether I like it or not. We will see Josh in Utah for a few days but he won't be home.

Please don't tell me to be grateful for what I DO have. I'm not trying to be rude, just honest. I do know what I'm lucky to have. Mostly we're blessed that Josh is still alive and is in an excellent facility, helping him to recover. That's my present. Insurance is paying in full, for now. That's a huge blessing. Also, Lauren is willing to work on her "stuff" and hopefully a job will come through for her, to keep her on a regular schedule and give her a sense of accomplishment.

Que sera sera. I always did think Doris Day was a little too perky.

I have other issues to come to terms with that affect me hugely. Some family issues; NO, not the growing up ones, more recent ones! Keep up with me, okay??

Some family relationships are not as I'd wish. Yea, I know, you're saying "Get over it, Beth! What else is new!" Easier said than done, right? I need to let go, take things AS THEY ARE, and not have expectations. Damn that radical acceptance!

Are you thinking right about now that I'm addicted to exclamation marks? I'm realizing that, too! Oops, too.

A giant struggle for me is accepting the diagnosis of cancer of one of my best friends. I can't wrap my brain and heart around the fact that she's 3 months younger than me. She's in pain and no one can fix that, no matter how hard her loving husband, kids, friends and doctors try. I am cherishing every moment(like putting on compression hose), smile, giggle, phone call and text we share. It's still not enough. It won't EVER be enough!!!!!!!

Radical Acceptance = Being ok with life not being fair

I also need to accept that people are going to hurt me. Not everyone will like me, in fact some people might just really dislike me. People pleasing is sooo hard to rid! (I really meant that exclamation mark)

Our family is dealing with a crisis of faith. Not going to our church of 22 years anymore is a real loss. Huge! Needed to happen, been struggling with making that decision for a long time. I need to accept this, and realize that God is everywhere, even in a new church (kinda silly, huh?)

Im trying so hard to not be on a giant pity potty. Some times are better than others. Working on it. Geez, I hate working so hard! I know many feel as I do. I'm not alone.

This is where you all come in. I've really isolated myself from life the last year or so. Especially the last 8 months. Not good for the depression, ya know. Yes, I'm such a 'clevah' girl.

We had friends over for dinner last Sunday and after they left, Rick and I realized we haven't had anyone over to our home since Mom's funeral. Heather, Patti, Emily and Trey - you have no idea how special it was to have you over and what a great time we had!!

I've been trying to put myself out there and get back into life, as of the last month. Seen many of you for the 1st time in a long while. I loved every minute and I miss you all. I know I need you. However, I have these thought that hold me back. Who would want to be around such a miserable person? Not me? Who is brave enough to ask us "How are things going?" Hehehe, I wouldn't. So I hide in my room. A lot!

Radical acceptance- Quit being so miserable, Beth! I actually am working on that. Will take time to build up my confidence. But as Sponge Bob says, "I'm ready! I'm ready!"

Thanks, you guys :) Thanks, God :) Thanks, Radical Acceptance. :p

Monday, November 7, 2011

There's Humor in Everything!

So, Rick said to me the other day he wants a tattoo that represents our life or our current state of mind. I jokingly asked of what. He wants a toilet, with a bat sitting on it. The bat will have this wild looking face.

Ya, you guessed it!!! Bat Sh#t Crazy!

I just nodded my head.

P.S. See, I told you I wouldn't be all whiney and mopey!! Just honest! :p

Tuesday, November 1, 2011

Be Prepared for the Dumping Ground Ahead!

So, I know I've been pretty quiet since we took Josh. It was an extremely hard day and I just couldn't. Well, couldn't do much of anything.

We took Josh for a 9:00 am check-in and were there about 2 1/2 hours. I thought I was going to have trouble leaving him with strangers, but these people are amazing. Right away I could see how professional and yet down-to-earth they were. We found out that the psychiatrist that will meet with Josh once a week, watch over him medically and manage of his meds knows Dr. Tarnow (his dr. here) and at some point in the past worked with him. That is so reassuring, especially as they will be in contact with each other.

After we turned in all of our paperwork (18 pages on-line and 46 pages to hand in), we got a tour. There are 4 houses on the property and Josh will be in his house, with his "new family" the whole time. The kids sleep, eat, have group and individual therapy, go to school, etc. all within the home. They have outdoor P.E. everyday, and what a place to be outdoors! Draper is a suburb south of Salt Lake City and sits in a valley between 2 mountain ranges. Josh will have the opportunity to ski, go snowboarding, hike and skate at the Olympic ice rink. Glad I talked him into a REAL winter coat, not a Houston winter coat.

I held it together until the very end, but that goodbye was horrible. Josh did well with it. It was all me. He hardly slept the night before and mentioned several times that he was scared but once we'd been there a while he was ok staying. He was the one consoling me. I kept my hand over my mouth because I could feel that huge sobs were going to come out. Of course my eyes cried like a fountain that I couldn't stop. After several minutes Rick said we needed to go. I found myself frozen, unable to move. My feet could not move, even though I knew it was time to leave. Rick had to pull me to get me to move. We got out the front door, out of eyesight and ear shot of anyone and then I myself was a bit taken back on the sobs/screams coming out of my mouth. One of the hardest things I've ever done.

We went back to the hotel and just napped and looked at each other with glances of "How the hell did we get here". Rick was so good about taking care of me, so loving and nurturing! The only other time I lost it was the next day, as we were driving to the airport. But, we KNOW Josh is in the right place, being well taken care of. We can't talk to him until this coming Sunday, but we can get updates any time. He's adjusting fine and all seems to be going in the right direction.

I want to thank all of you for the many messages of support, the prayers and the love sent our way. It means so much! Mental illness is such a lonely path. If we talked about all of our problems, that have been high intensity for at least the past 4-5 years, we would be the dreariest people in Texas. So, Rick and I keep most of our problems to ourselves (except for close family and 1 or 2 friends) and have found ourselves very withdrawn lately.

Besides keeping you informed about our family's journey, I hope that each of you learns at least one thing about families living with mental illness! My son is as sick as someone with a life-threatening disease. In fact, his very life has been in danger and that's why we took him to the best place we could find. However, many people just don't think of it this way and don't want to talk about it. I am determined to be different.

I am NOT ashamed of my kids' diagnoses. They are types of brain disorders, which are physical in nature. My kids are not behaving in this way because they want to. With brain chemicals all out of whack and having a brain that is not typical (better word than "normal") in its wiring imagine how you would feel. My kids suffer a lot and, in turn, act out, which makes mine and Rick's life unbelievably hard. My kids see their friends, what limited ones they have (takes an extraordinary young person to stand up for and be there for them), going off to college or being very successful in school, being invited to all kinds of things, watch them have cars, dates, and most importantly, pride in who they are and a bright outlook on their future. We want that for our kids, just like you, but so far that has not really happened.

Please don't think I'm incredibly bitter. At times I feel a little bitter, more like envious of our friends' and family's more typical family lives. I also know that many of you have had no picnic raising some of your kids. I try to stay positive but sometimes it's hard when the only good thing going for us is that a dr. is on our insurance or " at least he got one of the best doctors in the hospital."

Is it so wrong to want more? Is it bad to not want our kids to do therapy and follow ups for much of their adult lives? I don't think so. It's also ok if we would like to spend money on family fun things, instead of private school tuitions we've paid since 2005, therapy for our whole family several times a week, medication co-pays that are huge because they each have 3-4 meds, and so on.

I'm so sorry to dump on you like this. This is just NOT the way I pictured my life. Watching my children hurt is every parents' nightmare and we've been doing it for over a decade.

I would like you to see the many blessings you have in front of you, that maybe you are or are not aware of. Be grateful for having to deal with your kid and his/her many after school activities. That means they fit in and have things to look forward to and be a part of. Be grateful for the busy times when your child needs to be at 3 birthday parties all in one weekend. That means they have many friends and are accepted socially. Be grateful for late curfews, car wrecks, progress reports and Homecoming/prom drama because that means you're dealing with typical teenage issues. I know I'm happy for you! I really mean that!

I promise I'll be more upbeat next posting. Pinky swear!

Love you all and thanks for "listening to" my crap. I needed to get that out, I guess. Thanks for the support, messages, texts, etc. They've really helped Rick and me during the last several days. If you want, please try to comment here, rather than on Facebook. I'm trying to keep my FB postings drama-free and a bit more private. I really appreciate that.

Beth <3